Well, there's a saying "It's Friday but Sunday's coming."
Well, It't March and tomorrow is the first day of spring, but,,,
They say there's snow a comin.
We had our 2 week visit today with the neurosurgeon and the oncology folks the skinny is
Most of what they removed in this last surgery was Necrosis or was from treatment cause
There was a small tumor type thing but they were not concerned about it as it was a very slow
growing type,
The plan is to restart the Keytruda, which we were doing before, and continue getting the infusions
every 3 weeks. We will be reinforcing this with something called CCNU that is a link if interested. http://chemocare.com/chemotherapy/drug-info/ccnu.aspx
This will happen every other Keytruda infusion or every 6 weeks. He has to take a PFT, pulmonary function test, prior to starting the CCNU and they must bet in touch with our insurance companies.
for verification of payment or what portion of payment. Some chemo drugs ARE NOT COVERED by some companies and some only partially cover the cost. This new thing is simply a pill which he will take while at the hospital. First Keytruda was done today and on 4-11 they will do another infusion and give him the CCNU pill.
They did not give us a time line for the duration of this treatment but, then again, we did not ask.
I assume that the CT scheduled for 4-30 will tell them a bit more That will be about 8 weeks post surgery this time. They are adjusting down the dosage of the Decadron, steroid, he has been taking so there should be some improvement in the sugar and chocolate cravings. ALSO, he was told by the surgeon that only 1 cup of coffee preferably in the morning so.,,.Those who know Dave know that this will be a hhhuuugggeeee adjustment.
We'll keep you informed as to any changes. There are still restrictions lifting no more than 5 #s, getting rest, being under someone's care for most of the day time hours, keep from sudden movements and do his best to keep his mind in not serious thinking mode. limiting activity, non rubbing or scratching his scalp where the incision is. Still sleeping not flat in a bed. He's been sleeping in a recliner as after the first surgery and this has worked.
They neurosurgeon and the Oncology doctor were MOST IMPRESSED with how good he looked and was doing. We missed an opportunity to tell them about prayer working. OUR BAD!!!
We continue to covet your prayers there is still a long road ahead of unknown distance., Peace of mind and ability to tolerate, mostly for me, the changes that must and will occur. I've said before I never know who is showing up in the mornings and it's most difficult to watch my husband of 48 years do things that he would never have dreamed of doing in years past when he has reasoning present. This is probably the MOST DIFFICULT FOR ME to handle.
Thanks again and until next time
Judy and Dave
No comments:
Post a Comment